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Rank: Advanced Member  Groups: Registered
Joined: 12/16/2009 Posts: 156
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Hi
i just need to have a moan about my RA and the treatment my team at the hospital are lovely and they will let me know and try all drug nessacery to me, this last drug they have given me is ANT TNF Enbrel they all said it would take up too 12 wks to start and work so i started to use it and on the first week i thought my dreams had come true things swellings started to go down and i was happy then i did the second one and since then everthing has gone in reverse I am now on my 7th week and the pain and stiffness is as bad as it was before. I have left a message on the rummy nurses phone so she can ring me back and i can have a chat with her.
did Anyone else have this happen to them when they first went on it or is it just me.
sorry to moan but i get a little fed up some times with it as I am still fairly new to RA.
Thanks
Audrey
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Rank: Advanced Member
Groups: Registered
Joined: 2/26/2010
Posts: 271
Location: hampshire
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Hi Audrey, I havent taken this medication but just wanted to say sorry you are suffering at the moment and hope the rhummy nurse gets back soon. I know how you feel, you get a new medication and pin all your hopes on that this will be the one and bingo, its not!
Really hope you get something sorted and some relief soon
love Heatherxxx
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Audrey
I too haven t taken enbrel so I can t help you with it, I m sure you will get some sound advice from others who have taken that one.
I hope you are able to get things sorted urgently, so that you get some level of relief.
Thinking of you Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Hi Audrey-I think if it was me I would persevere a little longer. I had a similar experience when I first started on Humira. Sometimes these things take quite a while to kick in. Have you asked anyone for a depo injection to help tide things over? YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Audrey - sorry to hear you are struggling. I haven't started Anti TNFs yet but I'm sure I've seen similar posts and people will respond. I think Julie's suggestion about the depo is a good one. Take care.
Julie xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/21/2009
Posts: 106
Location: cornwall
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hi audrey
sorry things are not working out with the ANTI TNF's--like the others i haven't tried these yet but hope you will get sorted very soon
take care
caz x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Audrey Sorry to hear you are a little disappointed so far with Enbrel. I'm on Enbrel and have been for about 7/8 years, so well and truly tested! Prior to Enbrel I was on another anti-tnf, Infliximab, but after a year it started to lose efficacy and it was stopped. Infliximab had got off to a flying start and it was a miracle as it gave me back my life. I was devastated to be taken off it and couldn't belief anything could match it. But I was wrong!! Enbrel was slow to kick in and benefits were slow to appear but once established it has really proved itself. I know it doesn't help but 7 weeks is still early days and I would try and persevere with it if you can. I understand Enbrel is one of the best tolerated drugs and one of the most efficient. I can only praise the benefits it has given me; having been off it for four weeks (with the prospect of a further five) I now appreciate just how much it was doing for me!! I can't wait to restart!! I hope the nurse calls back soon and is able to offer advice. Please stick with it a little longer it may be worth it in the long term. Take care, Lyn x PS I am on 25mg injection twice weekly; this might be more beneficial for you and might be worth asking about.
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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giving too what i was like on MTX when i started . Have you giving it enough time .Whith the MTX I kept going backwards and forwards till it had been in my body 12 weeks .Then noticed a slight differance .Then a differance each week but it took months and months .So maybe give it enough time .See a O.T so you are resting at right times .That makes a big differance .Might be why you cant see it working ??? And don,t give up and dont think you have to do this and that plan it with rests . Are you doing too much ?IWONDER IF YOU HAVE HIGH HOPES and think you can do more .???I expect it takes months .Mind you not on this drug .But don,t give up. christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi Audrey
I too am on Enbrel, have been for about 3 years. It can take quite a while, 3-6 months, to work to its full potential, so don't give up hope yet. Maybe you can ask your rheummy nurse if you could have a depo injection to tide you over until it all kicks in.
I hope things improve for you soon.
Lyn
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Rank: Advanced Member Groups: Registered
Joined: 12/16/2009 Posts: 156
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Hi
thanks to you all and the rummy nurse has said more or less the same as everyone on this site and she is happy with how it is going.
so iam going to try and keep a level head with it and let the drug work as it wants to.
thanks to you lovely people for you kind Answers
will keep you up on how it is going still no better but lets hope
take care
Love
Audrey XX
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